Bob saget very privately turned a personal tragedy in her life into a mission to spare others a similar heartbreak … and a 9 year old girl named Sophie Anne and his parents are eternally grateful.
Sophie Anne has scleroderma, a group of rare diseases that involve hardening of the skin and connective tissue. It was a disease that claimed the life of Bob’s sister, Gay, who died in 1994 at the age of 47.
Bob has become a tireless advocate and fundraiser for the Scleroderma Research Foundation, but we found that he had also reached out to families suffering from the disease to offer them comfort and support.
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Bob discovered Sophie Anne about 2 years ago after her diagnosis. His parents, Marthe and Jsailor eff, tell us that they felt in the middle of the ocean with no lifeline when suddenly Bob entered their life.
Bob sent the little girl personalized videos, always with comfort and hope … “We’re going to find a cure, sending lots of love.”
Bob knew how the disease affects an entire family, so he offered his support to Sophie Anne’s sister with a school paper. The paper she chose to write, “Bob Saget: my everyday hero”. We were told that Bob was incredibly patient and outspoken about her life… spending over 30 minutes with her on the phone.
It didn’t stop there. Just a few months ago, Bob invited Sophie Anne’s parents to his show in North Carolina. He prepared their tickets, their meals and took them backstage after his show.
The Scleroderma Research Foundation benefits from the massive goodwill embodied by Bob. Over 1,200 people donated over $ 80,000 in total. And people are finding out about the disease because of Bob’s good work.
There are many more examples of Bob’s cuteness, but this one really stands out.